About

In writing my personal story for From Pain to Purpose, I felt a deep sense of responsibility to share the struggles of countless individuals who have reached out to me after watching my YouTube videos. Calls have come in from around the world, filled with pleas for help and comfort, yet many of these brave souls found themselves in a desperate situation—devoid of hope and proper medical assistance.

In Europe, there was only one surgeon specializing in Pudendal nerve entrapment surgery. The thought that so many people suffering from this debilitating condition could have access to only a single specialist is disheartening. Daily, I invested countless hours trying to provide support, encouraging those in pain not to succumb to despair.

The reality is stark: this condition is often referred to as a “death sentence” or even “the suicide disease.” I have spoken to individuals who felt so hopeless that they contemplated taking their own lives. In some cases, I could only offer prayers as they faced their final moments. For others, I arranged for transportation to see the specialist, hoping to provide them with the help they desperately needed.

It is imperative to spread awareness about this disease, characterized by pain comparable to that of end-stage cancer. Alarmingly, this condition is not included in medical school curricula. This oversight is a disgrace, not only globally but especially here in the United States. I have spoken with distinguished professionals and doctors who have admitted they’ve never even heard the term “Pudendal.” To them, this affliction seems almost unreal.

I have experienced firsthand the excruciating anguish that comes with this condition, at times nearing a stroke due to the overwhelming pain. I empathize deeply with those who consider suicide as a way to escape this suffering. The agony is comparable to labor—imagine delivering a baby through the rectum, with large bones pushing to escape.

If these medical professionals were to witness this suffering in their loved ones, would their perspective change? My mission is to ensure that no one feels alone in their struggle and to advocate for the recognition and treatment of this devastating disease.